Scripties UMCG - Rijksuniversiteit Groningen
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Informatievoorziening en communicatie rondom chemotherapie :Mogelijke verbeteringen in de informatievoorziening en communicatie met patiënten die chemotherapie krijgen in het Medisch Spectrum Twente.

(2016) Biesheuvel, V. (Vonne)

Background: In the care around cancer patients receiving chemotherapy, it is important to provide good information and effective communication: this leads to fewer mental health problems, aproved ability to cope with diagnosis and treatment, better self-care and higher overall satisfaction. Objective: This study examines which aspects of information and communication to patients receiving chemotherapy for the first time at the Medisch Spectrum Twente (MST) can be improved by evaluating which information and communication needs exist and to which extent these needs are met.
Methods: We conducted a research consisting of a prospective and retrospective studyline. In the prospective studyline, a total of 30 patients, that got their first chemotherapy treatment in the period between 15 February 2016 and 10 June 2016, completed a questionnaire based on the QUOTEchemo-Importance before the start of their treatment. After their first chemotherapy cycle, they completed a questionnaire based on the QUOTEchemo-Performance. In the retrospective studyline, 52 patients who received chemotherapy for the first time in 2015, completed the two questionnaires at once. Both questionnaires have been developed and validated to measure information and communication needs and experiences around chemotherapy treatment. Results: Patients attached most importance to aspects associated with ‘prognosis’, ‘treatment-related information’and ‘affective communication’. Almost all aspects of information and communication can be improved. The greatest potential for improvement was found for the aspects associated with ‘coping information’, ‘interpersonal communication’ and ‘alternative sources of information’.
Conclusion: In general, the patiens are satisfied with the information and communication around their treatment. However, there is room for improvement in different areas. In particular, there is a clear need for improvement regarding the attention for wishes, questions and support needs of relatives of the patient. The same applies to the assistence that is provided in finding reliable websites. When dealing with their illness and treatment, patients would like to get more support from the caretakers in the form of information on psychosocial care and support groups. They also like to see improvement in possibilities that are available to discuss concerns, fears and emotions.

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